This week in May2009, my first patient from Port Dickson, who refused surgery 3 times last year and insisted on alternative treatment despite my persistant counselling, contacted me and told me that she is in Hospital Tuanku Jaafar Seremban (HTJS). She can't eat, has diarrhoea and blood in her urine.
Through an endoscopy, Dr Ramesh the G.I. surgeon, found that her stomach had swollen as the tumour had grown bigger and he couldn't operate. He then tried to insert a stent (cost RM2,800) into her oesophagus but it was blocked. The patient told me that it was so painful that she screamed out loudly. Next, Dr Ramesh did a duodenotomy by opening a hole into her small intestines and inserted a tube for external feeding - that is only for fluids like water, milk and blended food to be poured into the tube.
Now she is so thin and frail + gaunt-looking. It is very sad to see her like this and she regretted that it was too late for any hope of surgery to be done to save her. She had spent thousands of ringgit in buying health products from her direct-selling friends, went for countless healing sessions and even bought an infra-red bed to sleep on. It was her choice and it was a futile wish now to turn back the clock. It was very difficult for me to comfort her and offer her solace. We can both pray together and we hope that she can advise all her family members and friends with stomach-cancer to go for surgery as soon as possible. It is vital and urgent to cut out the cancerous part of the stomach immediately, as the cancer cells are very aggressive and can spread fast to the other organs if surgery is delayed.
Still Dr Ramesh is trying his best. Tomorrow (27/5/09) the patient will undergo a cystoscopy to check her gall-bladder + urinary bladder as she still bleeds in her urine.
We can only pray and hope for the best. One of our support group member will try to help the patient get SOSCO + MAKNA bursary aid . Dr Ramesh will also arrange for her to get palliative care and chemotherapy.
Last month, April 2009, Ms Goh and I saw the patient from Mersing in HTJ S.eremban. He had problem in swallowing and could not eat much. Dr Ramesh did an endoscopy examination and successfully widen his stent inside his oesophagus. We were afraid that the stent has "collapsed" as it had been 6 months old. Now we were relieved when Dr Ramesh said that the stent could last another 3 or 4 months. Ms Goh tried to get help from MAKNA in supplying him some high protein Ensure milk for his nutrition. This June school-holidays, the Mersing patient will take his 2 children to meet his nephew and family in Muar, Johor, so that if anything should happen to him at least his 2 children will be cared for in future. He always has a cheerful disposition and he has a lovely smile when he shakes his head and said " Boh pien" ('No choice' in Hokkien dialect ) as he accepted his condition meekly.
The young doctor who had total gastrectomy last year, completed successfully all his chemo + radiation treatment last month. Now, he is helping to guide 2 new patients in their journey of chemo + radiotherapy treatment and advise through email another patient in Penang about post chemo-treatment. It is wonderful and big-hearted of him to help others.
It has been a year and 3 months since my operation last year. Time flies past and I am lucky to be given a clean bill of health. I had a CT Scan done recently and there is no recurrence - everything is normal. I thanked God daily and appreciate life more ! Comparing my illness with the other patients, I was very fortunate to have partial gastrectomy at 1st stage with none of my lymph nodes infected. Thus, I have no need to go for chemo and radiotherapy. I am very very lucky.
This is why it is so important to create awareness of this stomach-cancer. Any pain or uncomfortable ache in the abdomen that does not go away after medication but keeps coming on and off, it is best to seek an endoscopy and send the stomach tissues for biopsy. If it's cancerous cells, surgery is the immediate option. The earlier the better.
I noticed from the patients'symptoms that if they suffer the abdomen pain or discomfort for less than 6 months, the stomach cancer is usually at 1st stage. But if the pain lasts for a year, most of the patients are 2nd to 3rd stage. This is how fast the cancer cells spread. So time is the essence! There are a few patients who had these pains for more than a year; because of work commitments and responsibilities they finally see a doctor when the pain becomes unbearable. By then the cancer cells had spread to the intestines and surrounding areas around the stomach, got ascites (fluid retention) or the tumour has grown swollen in the stomach and spread upwards into the oesophagus...........
Sometimes, it is inoperable or the patient has to go through radiotherapy or chemotherapy to shrink the tumour first before surgery and mostly it is total gastrectomy, that is whole stomach cut out followed by intensive chemo + radiotherapy course.
Stomach cancer has no respect for anyone; whether one is rich or poor, educated or not, old or young....... if it happens, it happened. Some of my patients ask why ? how?
All I can say is that it happened and is there and it must be taken out....surgery first. Life is more important - LIVE for your loved ones before it is too late !
We have patients from all walks of life :- business tycoon, diplomat, architect, doctor, professional retirees, supervisor, tractor/van drivers, factory operator, child-minder, housewives etc.......and as young as 20 year-old-plus to as old as an 82 year old man.
Most of them were refered to Dr Ramesh through their doctors, family members or friends, some through the media - newspapers / google search. As Dr Ramesh 's fame become known as one of the top GI surgeons in Malaysia, so do the number of patients increase. Although stomach cancer is not as well-known and popular as breast or colon cancer, we hope to create more awareness.
Usually, Dr Ramesh the surgeon, will let me know when a new patient is to be operated. Doctor will give the patient my phone number and he/she will phone me or I will call the patient and ask him or her to visit me. I will then give the patient some notes on stomach-cancer plus notes on what to do during and after his hospital stay that is before and after his surgery. I will visit the patient during his stay at the hospital until his discharge.
Next, I will follow up by phone counselling on his diet and convalescing at home.
If the patient needs to go through chemotherapy and radiotherapy, I will inform other members cancer-survivors who had underwent this treatment to guide and advise the new patient. It is very important to see the patient go through the surgery and recover it well. Encouragement and positive mental outlook are essential.
Fortunately, mostly or nearly all the patients referred by the surgeon to me so far went through the surgery successfully and recovered except for one or 2 who were too advanced in their stages of cancer to do anything. The surgeon normally arranged them to go for palliative chemo treatment.
The main purpose of our group support is to create awareness and hope for the patients and their caregivers.
The most important message for those diagnosed with stomach-cancer is :
1. Do NOT wait and waste time. Get surgery done immediately.
Remember the cancer cells are aggressive + spread fast.
2. Don't be treated by non-medical personnels but rely on qualified medical professionals.
3. BELIEVE in your doctor + surgeon as they are professional and experienced in their fields. Trust them.
4. Early treatment is crucial and important.